Why We Give

Ronda helped inspire our organization and was the first individual entered into the research registry in 1975. Her mother, Adrianne, was one of the four founding Moms of our organization.

Ken and Shonnie Johnson

To commemorate their 50th wedding anniversary, Ken and Shonnie Johnson wanted to do something special in honor of their family and in tribute to their lives together.

Nancy and Dave Scott

For many years, Nancy and Dave Scott organized local fundraisers for the TSC Alliance and allocated 10 percent of the proceeds to the TSC Alliance Endowment Fund.

Will and Kay Cooper

Abigail and Amelia, the twin granddaughters of Will and Kay Cooper of Newport Beach, California, both have TSC. Besides helping their granddaughters, Will and Kay believe further TSC research may also help find a cure for cancer and many other diseases.

David and Cathy Krinsky

To honor the accomplishments of their daughter who has TSC, David and Cathy Krinsky established the Lauren E. Krinsky Fund as part of the TSC Alliance Endowment Fund with a donation of $25,000.

David and Penney Parkes

David and Penney Parkes volunteer to act as invaluable resources to newly diagnosed families. "We help them celebrate and commiserate their successes, disappointments and triumphs," David asserts.

Lisa and Jeff Hargreaves

Lisa and Jeff Hargreaves decided to set aside a portion of their estate for the TSC Alliance Endowment Fund because it is the only organization that watches out for anyone affected by tuberous sclerosis complex.

Doug and Linda Loftus

Doug Loftus has watched the TSC Alliance Endowment Fund grow considerably since it was conceived in 1994 when he was Chair of NTSA, the precursor to the TSC Alliance.

Philip and Marion Winsor

In February 1999, grandparents Philip and Marion Winsor made a gift of $100,000 to the TSC Alliance Endowment Fund in the form of a charitable gift annuity.

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